Organizers Forum

The Organizers Forum is a project of the National Disability Leadership Alliance, a national cross-disability coalition of organizations led by disabled people. The forum is coordinated and facilitated by Jessica Lehman, Executive Director of Senior and Disability Action, with support from Diane Coleman of Not Dead Yet.


April 2020: Taking Action Against Care Rationing

Transcript of April 2020 Call

This conversation focused on how disability communities can take action against the rationing of care for people with COVID-19, against the potential for disabled people and seniors to be deprioritized. We explored how we can organize our communities to fight back and win. Speakers talked about working to get states to change policies, raising public awareness, and making sure that people in I/DD and nursing home facilities aren’t left to die. We addressed the intersections between ageism, ableism, fatphobia and racism involved here.


Angel Miles, PhD (she/her)
Healthcare/Home and Community Based Services Policy Analyst, Access Living of Metropolitan Chicago

Angel Miles received her doctorate in women’s studies at the University of Maryland College Park. After completing her postdoctoral fellowship in the College of Applied Health Sciences at the University of Illinois at Chicago, she joined Access Living. She is responsible for monitoring disability rights developments in healthcare and home and community-based services, and facilitating systems advocacy efforts through an intersectional lens.

Ivanova Smith (she/her/they/theirs)
Chair of Self Advocates in Leadership (SAIL)

Ivanova Smith lives in Tacoma, Washington. They were a plaintiff for a complaint in Washington state about medical care rationing related to COVID-19.

Germán Luis Parodi (he/him)
Co-Executive Director, The Partnership for Inclusive Disaster Strategies

Germán Parodi is a disabled Puerto Rican, disability rights activist and advocate. He is a first responder and Co-Executive Director of The Partnership for Inclusive Disaster Strategies, an active community organizer with Philly ADAPT, and a leader in disability rights and full inclusion before, during and after disasters.

Max Airborne (they/them)
Fat Rose

Max Airborne is an organizer for collective liberation, rooted in fat liberation and disability justice. They co-founded Fat Rose:

Cathy Costanzo (she/her)
Executive Director, Center for Public Representation

Cathy Costanzo became the Center’s Executive Director in September 2011. She has worked in the mental disability law field since 1977 and has extensive experience in providing representation to institutionalized persons throughout the country and for litigating ADA/Olmstead cases. She is the former director of the Massachusetts PAIMI Project and the former chair of National Disability Rights Network’s Legal Committee. Ms. Costanzo is co-counsel in a number of class action cases in New Mexico, Massachusetts, Oregon and Ohio which seek to promote the integration and to expand the rights of persons with psychiatric and developmental disabilities.


March 2020: Organizing in the Age of the Coronavirus


Elandria Williams, PeoplesHub
Allegra Heath-Stout, JOIN with Justice
Larry Kleinman


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