Vaccination Allocation Advocacy
Email for sending comment to California Community Vaccine Advisory Committee: COVID19VaccineOutreach@cdph.ca.gov
Download a .pdf of more information including Sample Comment
- Directories for finding contacts for sending comment to local vaccine committee or public health agency: CDPH, California Conference of Local Health Officers; National Association of County and City Health Officials, California
- CDPH, Vaccine Doses Shipped, Administered
- CA Community Vaccine Advisory Committee
- California guidance on allocation for phase 1A
- #NoBodyIsDisposable Community Survey
- CFILC COVID-19 Disability Community Vaccine Survey
- California COVID Hotline: 1-833-422-4255
Crisis Standards of Care Advocacy
Know Your Rights:
- US HHS
- Center for Public Representation Resources
- CDPH Guidelines (June 2020) and Advocates’ Summary
- CDPH Implementation Guidance (Dec. 28, 2020) — requires all acute care hospitals to post their crisis care guidelines by January 6, 2021
- Kaiser Permanente’s Crisis Standards of Care
- Sample social media posts
Seek Legal Help:
- Disability Rights California
- Disability Rights Education & Defense Fund
- Independent Living Resource Center of San Francisco
- California Foundation for Independent Living Centers
- Senior and Disability Action
- LA County EMS Policy Concerns
- CDPH Licensing Complaint — note: we do not yet know how effective this will be for problems with crisis standards of care, but sharing here
Volunteer Opportunities:
Visitation Advocacy
Know Your Rights (KYR)
- US HHS Resolution — Connecticut
- CDPH Guidance
- DRC and DREDF KYR
- DRC and DREDF Guidance for Health Care Facilities
Sample Advocacy Email from Supporter
Complaints:
- California Department of Fair Employment and Housing: https://www.dfeh.ca.gov/complaintprocess
- For Medi-Cal patients, California Department of Health Care Services, Office of Civil Rights: https://www.dhcs.ca.gov/discrimination-grievance-procedures
- U.S. Department of Health & Human Services, Office for Civil Rights: https://www.hhs.gov/ocr/complaints
Sample Social Media Posts
Hey [hospital], what are your crisis care plans? We have reason to worry about seniors, disabled people, Black/brown/all people of color, and higher weight people not getting COVID treatment. We need to know! #DontRationOurCare
COVID infections are on the rise and hospital protocols turn away visitors. Check out this Know Your Rights guide to learn how to help advocate for yourself: https://tinyurl.com/ya5up4pt #NoBodyIsDisposable #DontRationOurCare
As the pandemic continues, we are still seeing instances of discriminatory care rationing happening in health facilities. It has to stop. #EndAgeism #EndAbleism #DontRationOurCare #NoBodyisDisposable
Michael Hickson, a 46-year-old father of 5, died because of care rationing; he was deemed to have “no quality of life” because he was quadriplegic. His death was a tragedy, and we must prevent others like it. https://tinyurl.com/y3vs2r4h #NoBodyisDisposable #DontRationOurCare
The lives of older people and disabled people are just as valuable as anyone else’s. Don’t let your local hospital put a crisis care plan in place that says any different. #NoBodyIsDisposable #DontRationOurCare
Tag your local hospital and/or county health department.
Hashtags to use:
#DontRationMyCare
#NoBodyIsDisposable
#PostYourPolicy
Building a movement of seniors, disabled people, and allies 
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